Obvious “Scoliosis Things” That Have Never Been Made Obvious
If you have recently found the thriving Scoliosis Community online, you may very well have had a few “Ah-ha!” moments. Little inklings coming together from various sources that have begun to form a realization that you are not, in fact, all alone in your scoliosis journey. Even better: that it’s truly not “just you” that have had odd little moments courtesy of your curvy and/or fused spine - we all have those moments!!
If you are brand new to the scoliosis journey: welcome. Here’s hoping some of these below instances will expedite your realization that there are tons of other people out there who live similar spine-full lives.
And if you’re somebody from the general non-scoliosis-living public reading this, then THANK YOU for your interest in learning about real life with scoliosis. Here’s hoping you have some fascinating “Ah-ha” moments of your own to share with the world about scoliosis to help us out.
As always, keeping this short and tidy, let’s get right into a meaty list of “Obvious scoliosis things that have never been shouted from the rooftops as actually being obvious scoliosis things and instead have left millions over centuries feeling like they’re alone and different and abnormally pained but that’s nonsense because so many of us experience these things daily so let’s put it out there and talk about it”(*working title).
Real Life with Scoliosis may include:
Standing too long is uncomfortable.
Sitting too long is uncomfortable.
Following your dreams.
Adjusting your goals.
Having days where you forget you have scoliosis/fusion.
Having days where all you think about is your scoliosis/fusion.
Running a marathon.
Not being able to walk up stairs without crying today.
Feeling like nobody understands your fears and pains.
Being made to feel teeny tiny because some medical professional dismisses your pain level/fear/concern/grief.
Wishing it would just go away.
Wishing there was a magic cure.
Wishing your spine never curved.
Wondering why this had to happen to you.
Hiding your spine/brace/fusion scar.
Showing off your spine/brace/fusion scar.
Not knowing how to explain what scoliosis/fusion is to a new person in your life for the first time.
Learning to be your own specialized personal bodybuilder.
Feeling nauseous in hospitals courtesy of childhood time spent traumatized there.
Wanting to talk about your scoliosis/brace/fusion experience but have no clue whatsoever where to begin or how to find the words.
Any of the above items resonate with you?
Twenty items in, and yet we could go on for another 200. THAT is Real Life with Idiopathic Scoliosis. There is so so so so much more to this condition that has never been unpacked publicly; that has never been properly showcased in books, movies, media; that has been packed up in the deepest recesses of patients’ minds as they endure some pretty gnarly medical trauma without sufficient supports in place.
And unfortunately, THAT is also Real Life with Idiopathic Scoliosis.
But we are changing this narrative.
Like what you read? Feeling seen FINALLY? That is who Tangled in the Curves: Real Life with Idiopathic Scoliosis was written for : for you.
Far more than these 20 points await you in its pages. Get your copy today and let’s continue this conversation.
Note: This blog is based on the author’s experience and opinion only, without any formal medical training. In no way should this blog replace professional medical advice.